Wow! that is so not what I expected to read by the subject like. So sad!
And yes, it is a bummer, but why go out to the 4x4 community looking for answers, support yes, but for answers all you have to do is google.
I am sure they can find all kinds of info, help and support of others in the same boat via the chordoma foundation:
http://www.chordomafoundation.org